Sustenance
September 28, 2009
I feel like a warrior when I walk on the streets…
Oh yea, I fainted there once coming out of the subway. And that bench right over there? That’s where I got into a fetal position one day so I wouldn’t faint. I sweat through a pair of jeans and my jacket until T could carry me home. Over there on the corner of Greenwich and West 10th I thought I was going down, my heart pounding through my throat. I crawled out of a cab from sheer weakness many times on Grand Street where the old apartment was. I convinced myself that I was going to die at the stand up soup counters at Dean and Deluca one day (still can’t eat there). And it goes on and on throughout Manhattan.
At first, this scared me. I didn’t want to come home to my city after being away for so many weeks. So many scary memories. Even walking down my own block I could feel the panic. For so long it was a struggle.
But now I choose to look at it like a yummy scar. Some really good stories that I can look back and laugh at (well it’s a chuckle now but one day it will be a laugh). The battle is over. And I won. I WON.
Now if I could just get my mind to play nice. Oh and sleep. Sleep would be good.
Kinetic
September 28, 2009
Wide awake. It’s 4:52 am as I write this. Some nights everything is just too much for me. Some nights everything hits my brain at full force and I can’t focus on one thought long enough to make sense of it all. There is so much residual build up from the trauma of the past two years: emotions, deep feelings, relationships, twists and ties that sit unsettled in my gut. I find it hard to navigate and the panic and anxiety take over. Tonight is one of those nights. I’ve resorted to Xanax which doesn’t seem to work anymore. My head feels heavy, and like something has a grip of it. The headache is everywhere. Body is restless and tired at the same time (strange, I know). Wish there were an easy cure for this torture. Time, they all tell me, will make it better. All seem less heavy. And so I wait. Now I’ll lie here and watch the light creep in the window and I’ll have accomplished nothing but bags under my eyes.
When the record stops
September 25, 2009
Feeling pretty awful today so I just took my blood pressure. 80/59. That is LOW, bad low. It’s stand up and get white spots and shake low. I am confused because I didn’t even take my heart medicine this morning which actually lowers my blood pressure. I usually don’t take it if I am feeling especially weak.
The other thing that is bothering me is my pulse… it’s high and I am just lying around. Why? This is the type of stuff, coupled with my awful chest discomfort and fatigue, that brings me right back to the scary place. I am so tense and worried right now. I find it hard to sit still. My brain goes in to immediate overload “what if’s” flying all around. It sucks.
Trying to stay calm and breathe. Deep down I know everything is ok, I am feeling healthy(er) these days, I’m so passed the scary times… right?
Nature in NYC. The sky is so deep blue today I can’t stop looking up. Happy Friday!
September 25, 2009

Nature in NYC. The sky is so deep blue today I can’t stop looking up. Happy Friday!
Own It
September 22, 2009
Yesterday I felt out of the ordinary awful. It has been months since I felt so horrible (luckily). I have no CLUE why. None whatsoever. My body was oh so heavy, it took me hours to get out of bed, I ached with every move. I didn’t want to take the painkillers since as of late, they make me way more crazy than is enjoyable for me (more on that in another post).
I used to get super mad when this happened but I’ve calmed down in that department. I’m riding it out. I dragged my butt to the acupuncturist in hopes of finding relief (I didn’t). I came back and crawled into bed. It always stings extra when it’s a nice day and I can’t enjoy it. Ah well.
The only thing bothering me is why? I try and try but I can’t seem to train myself to go without this question in my life. The Why’s rule my actions and I get so caught up that I actually feel myself getting sick over it. I need to be able to stop the why’s. Where would it get me anyway? There are “whys” in all aspects of my life that hold me back. I am aware of them sure, but it doesn’t mean I know how to stop.
The toughest ones are the why’s attached to people. I long for a time someone does something I find offensive or hurtful, and I don’t feel the need to obsess…why? I wonder wonder wonder… how do people not know? How are they so unaware when they are being dilusional/ self-centered/ thoughtless / I can go on… I love people, I do. I am a social person. That’s why I am always so disappointed time and time again. And mostly disappointed in people that I feel closest to for not getting in there and really living life. It’s become cringe worthy to watch them only scratch the surface to get by.
I don’t want to sound misanthropic that’s not the point here. I’d actually be ok with questionable behavior if more people just owned it. Own who you are people! I’ve learned a very important lesson these past couple of intense years looking inside myself: The truth is hard but it will set you free if you accept it.
I am grateful for my illness and my scarred heart. It has been my greatest and most wise teacher. It made me slow down and take the time to learn about myself. Even the ugly truths. I had to become my best friend to start the healing process.
My promise is to keep loyal to my person and pay attention for as long as I’m in this body of mine. I want to really really really live my life.

I got Essex back in January. The prettiest chihuahua I had ever seen. I was still pretty weak, and looking for a companion. I never felt the urge to have a dog before. But I was aching for company. Aching for a puppy. I loved taking care of her. It was the only thing that could get me out of my head. I was forced to stop worrying about my health, forced to give up the paranoia and the fear because now I was responsible for this little creature that depended on me for everything. I happily fed her, cleaned up endless poop, pee, and gave her medicine when she had kennel cough. I would give her meds and then sit down to take my morning doses. Only I didn’t mind so much anymore. I was slowly getting happier. Not to sound cheesy but watching her filled me with so much joy.
I knew back then I was a little allergic. My nose itched, I couldn’t keep her in bed with me. I blamed my choking cough on the heat in my apartment. I kept cuddling with her anyway.
I continued to become a “dog person” because Essex brought me so many laughs. She forced me out of the house when I was scared to go by myself, she laid next to me knowingly on the couch during the bad days when I ached so bad I would cry. She knew when I wasn’t feeling well and she just sat with me, stared, and wagged her tail.
I was away from her for a few months this summer when I left NYC for some much needed time away from my routine of doctors, healers, and diets. She stayed with my parents.
When I got back recently she came home immediately to us. I missed her a lot but I was not prepared for what came next.
Within the first night the allergies crushed me. Sneezing, choking, eyes like sandpaper. I didn’t want to believe it was her but it had to be. When I left the house the symptoms went away. I didn’t even want to think about giving her away. Two weeks have gone by and every night it got worse. I couldn’t breathe. Took Benadryl every night the past two weeks. As I thought back to when I first got her, I was indeed very allergic only I blamed it on so many things.
I spoke with my doctors and my acupuncturist and it really hit me when one of them said “living with an animal that gives you allergies is bad enough for healthy people. I see the havoc it brings on their bodies. You are especially sensitive and cannot / should not be exposed to this”. Because of my autoimmune condition is dangerous for my body to constantly be in “fight” mode against the dog allergies. It goes into overdrive and then attacks my own organs. Anything that can trigger this reaction are things I should stay far away from.
I’ve worked so hard to find a balance and get to where I am now. The thought of being sick again for any reason is too much to bear. I would have to make a decision. I am heartbroken that I have to give my little puppy away.
The only good news is that my parents can take her so I can still see her whenever I want. I brought her there last night for a two-week trial period to see if I do better, etc. I can say right now after a major cleaning, last night was the first time I had zero symptoms. I slept through the night without choking , sneezing, or waking up gasping for air. I am not sure how I will deal with this. The apartment is so lonely and empty without her. T and I miss that little monster so much.
At first I was so angry with my body. Once again I had to give up something I love because I am sensitive. When did I become such a delicate specimen? How come I have to give things up all the time?!! Now, I am just trying to make peace with it. It is difficult.
Yes, my health is the most important thing but the happiness she brought me had magical healing powers for sure. I love that little puppy.
I am sad today.
Brush your shoulders off
September 12, 2009
Made a decision to start living and loving my life again.
It was so easy to get lost in the fear. (It also helps that I’m (physically) stronger than I’ve been in the past two years).
I think it’s the only cure for what I have.
Major cleansing. I’ve taken myself off these meds over the past year. They’ re getting tossed right now. Feels so good.
September 10, 2009

Major cleansing. I’ve taken myself off these meds over the past year. They’ re getting tossed right now. Feels so good.
Proud
September 1, 2009
I have made some very huge accomplishments over the past seven weeks.
I’ve learned a lot about myself, I’ve gained faith in myself and my body again, and most of all, somewhere along the way I got my strength back. I’m not talking about muscular strength (although, that has been on the up as well), but that feeling deep inside where I can walk on the street and not be so afraid anymore.
I pushed myself a little and I am so glad I did. I proved to myself that I am not just a pacemaker and an illness. I remembered what it was like being me before all of this scary stuff happened. Sure, since I’ve started on this trip I’ve had very high highs and extremely low lows but right now it’s all good. And I guess right now is all that matters.
One solid accomplishment that seemed so real tonight as I glance at my medications… I am OFF THE STEROIDS! Yup, I stopped them last Friday. It’s been a year of that menacing drug and I look forward to evening out, getting my hormones back and maybe not crying so much, or going from happy to bitch mode within seconds. Yes, this is a great great thing.



