Save Laurens Heart

Big appointment with my heart failure / heart transplant doctor up at Columbia Presb tomorrow.

We are going to discuss the next step and schedule tests to look close at my heart again to see if the leaky valve has progressed.  We are also going to discuss my options if it has progressed.  Options meaning surgery. (I hope it has not progressed).

Then today I get a phone call that I was supposed to get way back in September.  Yes, I’ve been waiting five months for this call.  It was the office of the doctor who runs the Evalve trial at Columbia.  They say that I am a candidate and they want to get all the testing done as soon as possible because “there is someone waiting”.

When I asked what they meant by that she explained that they only perform this procedure in pairs, for two people at a time, and there is a person who has been approved that is awaiting another person to get it done.  I had a weird reaction to this.  I was really annoyed actually…  I wait and wait and wait for your phone call now I’m going to be rushed into this?  I don’t even know how I feel about getting a clip implanted into my heart.  I’m not sure I even want this!  They are moving quickly but I cooperated since I like to have options.  I spoke with the nurse on the phone who asked me a bunch of questions and explained the process of testing to me.  This is means more time up at the hospital.  Awesome.

Tomorrow I’m bringing this up at my appointment.  I don’t have a great feeling about this Evalve thing so far.  I wonder if I’ll change my mind…

Have I mentioned how cranky I am today?  The pain has subsided but it’s still there.  I am super frustrated and really can’t stand to be inside any longer yet do not feel well enough to go out today yet.  I’m in bumble bee mode.