The frustration continues as I try to get my test results from last week.

I was rushed to go in for this test and have since never heard from the doctor in charge with my results.  I’ve heard second-hand murmurings from my nurse and from his assistant (not a nurse) that I am NOT a candidate for the Evalve trial.  It wasn’t until today that I spoke with my regular nurse and she explained that from what she knows the doctor says the way my valve is structured the clip will not help me.

I call his office every day and get forwarded to voicemail.  I left another message this morning.

It’s so unsettling when you feel like doctors do not care or don’t care enough to take the time and explain things.  I’ve been angry at this doctor… first, for the disorganization and for the five months of waiting to hear from him and schedule this test –and now because he doesn’t care enough to call me with my own test results.  There is also a major question here: What do I do NOW? Can anybody tell me?

These doctors just do not understand what it is like to be in a position like this.  I am a patient, this is my body and my life we are talking about.  I am scared, I don’t know what my next course of action is, and I feel it is my right to know my own test results so I can move on.  Are they so disconnected that they do not realize a patient needs some level of respect, care and explanation?

I feel like one of the mice they use to test in labs.  They scooped me up the day before without advance notice, ran invasive tests on me, and tossed me out now that they don’t have a need for me for this trial.