Stress Pain Stress Pain Stress

I’m sure it’s no coincidence that this major pain flare up has come a month or so into one of the most stressful times I’ve ever experienced.  Yes, I am STILL in pain.  It will be a week tomorrow that this heavy discomfort has terrorized my bones muscles and joints.  They ache for relief.  I do anything for an hour or even ten minutes of sweet relief.
Something about this decision, the entire mess of emotions that come with hearing I most likely have to get open heart surgery.  It is one of my biggest fears… not just the surgery (oh man that surgery), but the fact that I was on a high.  I felt amazing, coming off a summer of rebuilding and replenishing I was brand new and ready to start living fearlessly again!  It was like the record stopped that day in my cardiologist’s office.  I was aware how sad I became that day but I am only now realizing just how much damage was done.  I’d been crushed.  This again? So soon?

As has always been the case in the past I will do whatever it takes to keep my heart safe and working the best it can -scar tissue and all.  I’ve been crushed before and I get up. I can do this, I know it.  It’s the in-between that’s tricky.  The waiting, the doctors, the lack of trust I have in doctors, the planning, the anticipation… will I be… OK?  How do I know what the “right” decision is?  This is my life… how do you even begin to make decisions like this? The thinking thinking thinking, the sleepless nights, the worries, the fears.

The questions, the waiting, the visions of hospital beds and operating rooms, I think they have all took to hiding in my muscles and joints.  It feels like I’m carrying it all with me all the time.  How do I just let go?

Stem Cells and Scleroderma

In light of all this recent talk of open heart surgery I have become absolutely determined to find an adult stem cell treatment for my heart. My idea is to wait out the surgery for as long as I can and hope hope hope that there is a stem cell option to repair my scarred heart.

The idea is to treat the underlying problem if we could, rather than going in and sewing up a valve to repair it (even though the wall to which this valve is attached to is still thick and stiff with scar tissue). Repairing the valve is not going to fix my heart.  I see it as a band aid.  A very serious terrifying surgery for a band aid.

Stem cells on the other hand have the possibility to truly heal my heart.  They create NEW tissue which could mean a potential for fading out the scar tissue that covers 70% of my heart muscle AND fixing the leaky valve in one swoop.  Of course, it’s not as simple as I make it out to be…

For one, any stem cell treatment I’ve come across where they inject the new cells back into the heart has been controversial among my doctors.  I haven’t gotten the green light from anyone to go through with these things.  They tell me the technology is simply “not there yet”.  C’mon technology!  You have to get “there” because I’m so counting on this.

There is a new website dedicated to “educate and spread awareness about the potentials and successes of adult stem cell therapies.”  I’ve been combing through since I came across this site at 9 am.  They are even doing stem cell TRANSPLANTS for patients with Scleroderma!  It can reset your immune system!

I am hopeful.  Extremely hopeful.  Now, if I could just find the right one for me and my ticker.  It’s the one wish I make when I see my birthday on the digital clock, or a blow a loose eyelash from my fingertip, and right before I go to sleep at night and first thing I do when I wake in the morning.  I just want an answer, to feel in control again..  something to DO to help this go away.

http://www.stemcellresearchfacts.org/